| Speaker Affiliation | Haifa University, Israel |
| Start | 24.07.2015, 15:00 Uhr |
| Location | TU Braunschweig, Informatikzentrum, Mühlenpfordtstraße 23, 1. OG, Hörsaal M 161 |
| Invited by | Prof. Dr. Reinhold Haux |
| Overcoming major barriers of translational medicine is heavily dependent on streamlining the health information collection, organization, storage, retrieval, analysis and exchange among all stakeholders. However, the health arena is still highly fragmented into many silos of information that cannot interoperate easily, as well as into services that cannot be easily integrated to achieve more ambitious goals of analytics. To this end, it is beneficial to have a translational health info-structure (THIS) that is ‘a servant of three masters’: biomedical research, clinical practice and most importantly - the individuals whose health information is being processed in THIS. The translational nature of THIS is made possible thanks to the following principles: (*) A warehousing—marts architecture, where warehousing of data in its richest representation is coupled with multiple marts optimized per usage. Warehousing of source data is based on internationally recognized information standards, which are dynamically constrained to create information models that fit various needs of both bioinformatics and healthcare, as well as interoperability among various THIS systems and other stakeholders; (*) Dispersed data sets of an individual are integrated into a single and coherent electronic health record that is interoperable and longitudinal (iEHR). The iEHR embeds clinical, environmental and biological data and thus (1) being a better input to analytics and (2) facilitates analytics tooling integration; (*) The iEHR is a standard payload for interoperability and can also be better controlled by the individual due to its transferability to the new generation of independent health record systems where data protection and role-based access control mechanisms are practiced with a patient-centric approach. A reference implementation that followed a few of the aforementioned design principles will be presented, based on the Hypergenes project (an EU-funded funded GWAS on essential hypertension). Short bio: Amnon Shabo (Shvo), PhD, specializes in health informatics and worked at IBM Research Lab in Haifa in years 2000-2014. He co-founded and chaired the Medical Informatics Community in IBM Research and headed the IBM worldwide program on healthcare & life Sciences standards. Amnon established and chairs two professional work groups: (1) the IMIA Work Group on Health Record Banking and (2) the EFMI Work Group on Translational Health Informatics. Amnon has been leading a few standardization activities: he established and co-chairs the HL7 Clinical Genomics Work Group and is a co-editor of the Clinical Document Architecture (CDA), Continuity of Care Document (CCD), the Family Health History (Pedigree) and the Genetic Testing Report (GTR) standards. Amnon specializes in longitudinal and cross-institutional Electronic Health Records and is a pioneer of the Independent Health Record Banks vision. He is currently a Research Fellow at the Department of Information Systems, University of Haifa and can be contacted at amnon.shvo@gmail.com. | |